You Will Never Speak For Me

Okay, I’ve been inactive, I’m not even going to explain myself on that one this time because it’s a common occurrence, it’s what being a man with limited resources and unlimited depression does when he has a blog. I’m back, with a vengeance I might add, to put in my two cents on Autism Awareness Month, particularly, how many of you might be approaching this the wrong way. My first point, is your profile picture covered with a blue filter? Well then, read on, you might reconsider that filter by the end of this article.

Autism Awareness Month, largely paraded by the charity Autism Speaks, is about raising awareness of the trials and tribulations that come with autism, both for those who are on the spectrum and those who have loved ones that are. Speaking as a man both on the spectrum and related to another who is, I won’t deny, there are trying moments in life that were daunting to us but perfectly normal events to the other kids in classes or colleagues at work places. Social etiquette, for example, eluded me for so long that I got angry at other people for having it when I did not, I came to think of myself as living in a world of imbeciles, not realising that not only did the world struggle to understand me, I too struggled to understand the world. However, my biggest qualms with Autism Awareness can be summarised thusly:

  1. People are AWARE, what they lack is UNDERSTANDING
  2. Autism Speaks

I shall challenge these points in reverse order to how they are listed, because Autism Speaks is to autism what Donald Trump is to Mexico – hilariously misinformed and full of hatred towards their people.

Autism Speaks is not a happy jolly charity as they might have you believe, their solution to the struggles of the autistic community would be akin to Oxfam forming a militia and marching on Syria, Autism Speaks seeks a ‘cure’ to autism, a ‘prevention’ of it. Don’t believe me? Check their ‘About Us’ section on their site:

“Autism Speaks has grown into the world’s leading autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism”

Direct quote. Causes, prevention, treatments and cure. You know, like it were a disease. Autism Speaks has been called out in the past on recommending things such as bleach enemas and allowing parents to express their desire to ‘fix’ their child, sometimes with said child in the room. Now this, this is personal, this isn’t just social justice speaking, this is “You do not tell me that I, my brother and thousands of others are broken human beings you need to fix, we are fucking beautiful”.

You know what you’re saying when you want to cure someone of autism? You’re saying you want to kill them and replace them with someone similar but normal. Autism affects how someone sees the world, how they think, what they like, what they don’t like, what knowledge they have, what things they will remember, their hopes, dreams and fears are all dictated by autism, it is not a disease or curse but a whole other way of existing as a human being. I have tried to explain this to people as being left-handed in a right-handed world. You may have challenges trying to be like the others but in the end, you find a way and your way is different but it works just the same in the end and there’s no reason a left-handed person is less valid than a right-handed one. You could try to make that person right-handed but it would change how they do everything, it would mean they had to relearn everything they ever knew about how to interact with the world and your friend or family member would be someone entirely different for it. In a sense, you would replace them with someone you perceive to be more normal, or rather, more like what you think should be normal. If you want to screen for autistic children or find a way to fix them, you want them dead. This isn’t a disability, this is a way of being human that you cannot understand and that is why you want us dead.

So you might understand why I say we don’t need your awareness campaigns, much less do we need a charity that thinks of us as a blight to be remedied. Autism and aspergers aren’t things you need to raise awareness for, they are things you need to raise understanding of. I generally scoff at awareness campaigns, who at this point is still clueless what breast cancer is? We KNOW what cancer is, we KNOW what diabetes is, we KNOW what Parkinson’s is, teach people what it means to live with these things and how to help those who have to, make people understand why diabetes isn’t just “Ate too much sugary food” or why cancer isn’t just “Thing that can kill you but if you take pills and go bald, you might not die”. The ALS Ice Bucket challenge was the last awareness campaign I agreed with. Why? I HAD NO FUCKING IDEA WHAT IT WAS. Awareness is Stage One, Stage Two is education. Imagine if your teacher taught you to read by pointing at a book repeatedly and went
“That’s a book. People read those”
Ok great, how? Why? Where do I get a book? What is a book for?
“That’s a book. People read those”
I am aware that is a book, tell me more.
“That’s a…”
YOU SEE THE PROBLEM?

Also, putting autism in a class with cancer and motor-neurone disease in that it is something you raise awareness for, you class it as a problem. If a charity is ‘raising awareness’, it is telling you there is a problem to be fixed. If there is a disease we cannot cure, we need to be aware of it. If there is a country ravaged by war, we need to be aware of it. If there are people dying in ways we didn’t realise, we need to be aware of it. What the fuck do we need Autism Awareness for? I’m aware it exists, what else will you do Autism Speaks? Nothing, except witter on about how hard it is to deal with your kids because they’re noisy or won’t keep their jumper on or don’t like other children.

I’m sorry to get so angry, except I’m not. Autism Speaks does not, has never and probably never will speak for the autistic community, it speaks for those who wish there wasn’t an autistic community, and I personally am glad there is an autistic community. I tried talking this over with my brother, who also has autism, and he thought perhaps he wouldn’t miss it if he didn’t have it and I had to try to explain to him he couldn’t perceive not having it because having it has shaped his entire being. The idea of being neurotypical is just inconceivable to me, it would not be me, he could have my face and voice but he would have different friends, feelings and interests. Please, for goodness sake, do not partake in lighting it up blue, “Go Red Instead” is a counter-campaign about raising awareness of Autism Speaks, who, if they want centre-stage this month, let’s make you aware that they’re not just about helping families live with autism, they’re about helping families NOT have to live with autism, helping families abandon autistic children, helping families mutilate autistic children and poison them. Check it out at the link below and please, remember that autism doesn’t need a cure, it needs people to realise that we are just like you, seek to understand us like you seek to understand your fellow men, for we are they.

http://profile.actionsprout.com/o/18D37E

A Problem In Pink

October is a month filled with many different things isn’t it? Halloween comes to mind first but let’s not forget it is also Stoptober for those trying to quit smoking and is the designated Breast Cancer Awareness month. Pinktober… yes not a very clever name, is supposed to be a month in which efforts are made to raise awareness about those diagnosed with breast cancer, though there are some issues I have with the whole thing. I never take too kindly to campaigns solely based in raising awareness, chances are we’re aware of what they’re campaigning about (except maybe things like the ALS Ice Bucket Challenge raising awareness of Amyotrophic Lateral Sclerosis, something I’m sure wasn’t much in the public mind beforehand). So what’s wrong with Pinktober if you ask me? Well, where to begin?

The Pink Ribbon movement was originally a feminist ordeal to get the discussion of breast cancer out in the open because whilst breast cancer has been around for a long time, it hasn’t always been an acceptable subject of conversation. Ridiculous to think of it like that now but once upon a time, a time so recent that your parents or grandparents might remember it, you had to keep hush-hush if you had it, talking about your breasts in any context was vulgar, even if it was to tell people you have a life-changing affliction that affected said breasts. However, what started as a noble goal to make a taboo subject something the world had to pay attention to is now more of a money-making scam laden with sexism, commercialism and a small-minded attitude of focus upon breasts over cancer or indeed, the victims they’re supposed to be helping out. In fact, there’s even a term for this corruption, pink-washing.

Pink-washing, in this instance, refers to the sleazy efforts of corporations trying to cash in on a charity by slapping said charity’s label on a product they sell and assuring us a percentage of their profits goes to the charity they claim to represent. The pink ribbon is the most exploited of these symbols, having been stuck on even things such as beer bottles. Whilst many companies are happy to just give some spare change away and think themselves in the right, this easy way out fails to educate anyone on anything and some of these percentages and donations are so minimal they can’t be doing it for anything beyond good publicity. Of course, if you point this out to people that buying all the ribbons in the world doesn’t promote any awareness whatsoever and that pink shirts and pink pop bottles aren’t the answer, you get called out as a monster, strange though it seems. A campaign to discuss a serious health condition and the knock-on effect it has on the lives of those with it has been reduced to a garish pink mess of boob jokes and self-righteous parties. If you buy pink, you’re helping right? Well, no, you know no better so you’re not more aware and when these pink ribbons can be found attached to products that can CAUSE CANCER, it’s a real kick in the shins for those fighting for the cause. After all, you don’t see Oxfam branded caviar or British Heart Foundation branded cigarettes.

The media has dumbed down something as complex as the development of cancer into a popular viral branding scheme, dressed it up in pink and made it into a sexist mess? How is it sexist you ask? Free the ta-tas. Yeah, a breast cancer awareness campaign focused solely on breasts, on how wonderful and amazing boobs are. Forget the woman behind them, she’s dying, so what? Nah, save those perky pink orbs! A woman is more than a pair of breasts! Let’s not forget that men can get breast cancer, do we free his ta-tas too? I’m all for funny and interesting ways to get people to care but efforts lately have been warped into focusing on a sole part of a woman’s anatomy and forgetting about the men in the same boat, the women being oggled and the families who have to adapt or possibly even grieve. A study by Bright Pink showed two thirds of women they interviewed would do more to change their lifestyle if it prevented breast cancer but only about half of those women knew where to start making those changes. The Pink Ribbon stuff has been around for as long as I can remember but I’ll admit to a limited knowledge of breast cancer and I’ll bet most of you reading couldn’t outline how to get checked, how to prevent it happening and what happens if you do get breast cancer. One in eight women will get breast cancer in their lifetime but only 10% of women know what to do to correctly estimate their risk of developing it… put simply, we know what breast cancer is, we as a society just know jack shit about it.

There is a certain kind of ignorance that surrounds this cause, a kind that I’m sure will have some who read this thinking I just don’t care and I’m calling this entire thing a worthless con, I’m not. However, when you reject the people your cause represents and turn a noble cause into a capitalist nightmare to feel like you’re the patron saint of all things good and righteous just because you wear a ribbon and attend a cake sale, you fall out of touch with the spirit of charity and you overlook the importance of your cause. I understand it’s difficult to get actual factual information circling in the public psyche but it is not impossible and sadly painting the town pink and calling it an effort to raise awareness isn’t the way to do it. We’re all aware, who really hasn’t heard of breast cancer these days? The people are AWARE of it, now it’s time to educate them on the reality of it, on the people it changes and what needs to be done. As it stands, this campaign has become something ignorant, something corrupt and dare I say it for the irony… something rather cancerous.

The Western World

As most of you are hopefully aware, I have been born and raised in England, the largest country in Great Britain, and the land seemingly remembered across the world as being home of the crumpet, cucumber sandwiches and cups of tea. I can tell you from the offset that whilst these stereotypes have their grounds in reality, they are generalisations that don’t apply to every single Brit you meet, much in the same way that every American isn’t a gelatinous blob rolling out of Wal-Mart on a mobility scooter with a cheeseburger in one hand and his automatic rifle in the other whilst loudly singing Stars and Stripes. Britain and America rip on each other like two psychopaths who have stumbled across a spare box of waxing strips, and occasionally one calls the other this or that and everyone gets on their high horse of patriotism and ultimately proves nothing beyond the fact that those who live in privileged countries can find nothing better to do than kick up a fuss over nothing whilst blissfully ignoring starving orphans and dying soldiers in distant lands.

I would like to point out I have two nationalities, being both English and Maori, the indigenous people of New Zealand, and I proudly declare myself as being a mixture of these two countries. I pride myself on my Maori heritage and love to ponder my possible relation to chieftains of note, but I do so whilst sat there with a mug of tea so I’m trying to find that balance between being Mr Bean and a Maori warrior. I love England but I also love New Zealand and though sometimes I’m a little too keen to give history lessons on the latter, I don’t ram my nationality down anyone’s throat as if forcing them to drink the blood of my ancestors so they can understand my heritage a little better. I can say beyond doubt that not all of us are that considerate to others when we consider our nationality and the difference between being a patriot and shoving star spangled boots up our neighbour’s arse.

Second thing to point out, British people, is Great Britain is called such because it is the greater land mass in comparison with Brittany, a small nation near France, and it is not an honorary title bestowed upon us by God as if to say ‘You Brits got it right with the whole civilisation thing, assume your God-given right as pretentious overlords of three quarters of the world… fuck…’. Britain is more than just England too, Americans, it includes Wales and Scotland, sometimes even Ireland, or as some of you know them, the dragons, the angry men in skirts and the drunks. Once again, all stereotypes and not to be relied upon as cold hard fact but I will advise you never pick fights with the Irish because I know a few, and they’re a spirited bunch. We can all be proud of who we are, by all means, but your pride is your own and shouldn’t be made into a patriotic baton to beat foreigners with.

America is said to be the worst culprit for self-righteousness, viewing itself as the land of the free, the brave, the bold, the intelligent, the rich, the blessed, the inventive, the creative and pretty much every other flattering adjective but let’s not forget that as well as Britain having Churchill and quiet sensibility in its favour and Tony Blair to hold against it, you, America, have George Bush and serious issues with gun crime so let he who is without sin cast the first stone and people who live in glass houses shouldn’t shit all over their furniture. America has some good points and some bad points, like every other country. Yes, you’re the country that gave us computers and Facebook and Google but you also gave us the war in Iraq and you somehow earn the scorn of every terrorist organisation in the world and it’s not just jealousy that drives them onward.

Britain, America, you’re both flawed nations and you’re family really when you look back far enough so stop this pointless argument because we can fight forever on who’s better than who to no avail. Every category you can think of, both nations has good examples and bad examples of each. Politicians, inventors, weird laws, criminals and so forth, it goes on and on and on. However, neither of you can assume the moral high ground and you can both be dicks to one another with silly stereotypes that make no sense, with Mr Britain telling Mr America to fuck off home to have sex with his children then polish his gun whilst lazily filling his face with melted cheese but then Mr America would counter by telling him to shove some jam on toast up his arse until his snot turns pink and he passes out in the middle of his sexual encounters with the queen. I’d like to make this clear: people who make a point of having these arguments have an underlying common problem with their own character and that is that they are actually just angry nerds with acne, sat at a computer being flag-waving narcissists who couldn’t get sex in a brothel even if they shat solid gold.

At the end of the day, I’ll still hear some dumb shit happening in America on the news and I’ll smirk with my air of haughty British sarcasm and say ‘Oh America, such a great place to live’ then snigger to myself but that said, I live in a country where there was a serious political debate over who eats more pastries. The entire western world is fucked in the head; there is no point in being racist about it.