You Will Never Speak For Me

Okay, I’ve been inactive, I’m not even going to explain myself on that one this time because it’s a common occurrence, it’s what being a man with limited resources and unlimited depression does when he has a blog. I’m back, with a vengeance I might add, to put in my two cents on Autism Awareness Month, particularly, how many of you might be approaching this the wrong way. My first point, is your profile picture covered with a blue filter? Well then, read on, you might reconsider that filter by the end of this article.

Autism Awareness Month, largely paraded by the charity Autism Speaks, is about raising awareness of the trials and tribulations that come with autism, both for those who are on the spectrum and those who have loved ones that are. Speaking as a man both on the spectrum and related to another who is, I won’t deny, there are trying moments in life that were daunting to us but perfectly normal events to the other kids in classes or colleagues at work places. Social etiquette, for example, eluded me for so long that I got angry at other people for having it when I did not, I came to think of myself as living in a world of imbeciles, not realising that not only did the world struggle to understand me, I too struggled to understand the world. However, my biggest qualms with Autism Awareness can be summarised thusly:

  1. People are AWARE, what they lack is UNDERSTANDING
  2. Autism Speaks

I shall challenge these points in reverse order to how they are listed, because Autism Speaks is to autism what Donald Trump is to Mexico – hilariously misinformed and full of hatred towards their people.

Autism Speaks is not a happy jolly charity as they might have you believe, their solution to the struggles of the autistic community would be akin to Oxfam forming a militia and marching on Syria, Autism Speaks seeks a ‘cure’ to autism, a ‘prevention’ of it. Don’t believe me? Check their ‘About Us’ section on their site:

“Autism Speaks has grown into the world’s leading autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism”

Direct quote. Causes, prevention, treatments and cure. You know, like it were a disease. Autism Speaks has been called out in the past on recommending things such as bleach enemas and allowing parents to express their desire to ‘fix’ their child, sometimes with said child in the room. Now this, this is personal, this isn’t just social justice speaking, this is “You do not tell me that I, my brother and thousands of others are broken human beings you need to fix, we are fucking beautiful”.

You know what you’re saying when you want to cure someone of autism? You’re saying you want to kill them and replace them with someone similar but normal. Autism affects how someone sees the world, how they think, what they like, what they don’t like, what knowledge they have, what things they will remember, their hopes, dreams and fears are all dictated by autism, it is not a disease or curse but a whole other way of existing as a human being. I have tried to explain this to people as being left-handed in a right-handed world. You may have challenges trying to be like the others but in the end, you find a way and your way is different but it works just the same in the end and there’s no reason a left-handed person is less valid than a right-handed one. You could try to make that person right-handed but it would change how they do everything, it would mean they had to relearn everything they ever knew about how to interact with the world and your friend or family member would be someone entirely different for it. In a sense, you would replace them with someone you perceive to be more normal, or rather, more like what you think should be normal. If you want to screen for autistic children or find a way to fix them, you want them dead. This isn’t a disability, this is a way of being human that you cannot understand and that is why you want us dead.

So you might understand why I say we don’t need your awareness campaigns, much less do we need a charity that thinks of us as a blight to be remedied. Autism and aspergers aren’t things you need to raise awareness for, they are things you need to raise understanding of. I generally scoff at awareness campaigns, who at this point is still clueless what breast cancer is? We KNOW what cancer is, we KNOW what diabetes is, we KNOW what Parkinson’s is, teach people what it means to live with these things and how to help those who have to, make people understand why diabetes isn’t just “Ate too much sugary food” or why cancer isn’t just “Thing that can kill you but if you take pills and go bald, you might not die”. The ALS Ice Bucket challenge was the last awareness campaign I agreed with. Why? I HAD NO FUCKING IDEA WHAT IT WAS. Awareness is Stage One, Stage Two is education. Imagine if your teacher taught you to read by pointing at a book repeatedly and went
“That’s a book. People read those”
Ok great, how? Why? Where do I get a book? What is a book for?
“That’s a book. People read those”
I am aware that is a book, tell me more.
“That’s a…”
YOU SEE THE PROBLEM?

Also, putting autism in a class with cancer and motor-neurone disease in that it is something you raise awareness for, you class it as a problem. If a charity is ‘raising awareness’, it is telling you there is a problem to be fixed. If there is a disease we cannot cure, we need to be aware of it. If there is a country ravaged by war, we need to be aware of it. If there are people dying in ways we didn’t realise, we need to be aware of it. What the fuck do we need Autism Awareness for? I’m aware it exists, what else will you do Autism Speaks? Nothing, except witter on about how hard it is to deal with your kids because they’re noisy or won’t keep their jumper on or don’t like other children.

I’m sorry to get so angry, except I’m not. Autism Speaks does not, has never and probably never will speak for the autistic community, it speaks for those who wish there wasn’t an autistic community, and I personally am glad there is an autistic community. I tried talking this over with my brother, who also has autism, and he thought perhaps he wouldn’t miss it if he didn’t have it and I had to try to explain to him he couldn’t perceive not having it because having it has shaped his entire being. The idea of being neurotypical is just inconceivable to me, it would not be me, he could have my face and voice but he would have different friends, feelings and interests. Please, for goodness sake, do not partake in lighting it up blue, “Go Red Instead” is a counter-campaign about raising awareness of Autism Speaks, who, if they want centre-stage this month, let’s make you aware that they’re not just about helping families live with autism, they’re about helping families NOT have to live with autism, helping families abandon autistic children, helping families mutilate autistic children and poison them. Check it out at the link below and please, remember that autism doesn’t need a cure, it needs people to realise that we are just like you, seek to understand us like you seek to understand your fellow men, for we are they.

http://profile.actionsprout.com/o/18D37E